Living Rarely

I have a story to share. A story of pain, despair, physical and mental torture . . . And hope.

I want to share my valley of the shadow of death because someone may need this one day. Because my cancer is so rare that there’s no one else who can relate.

I am one in 246 million (give or take). One of thirty documented cases. One who has survived by a teeny tiny thread. One who is still under surveillance and understands how that changes the rest of your life.

This is a way for me to document my Ewing’s sarcoma of the pancreas experience, recovery, and future with my new normal. I’m a creator and so I have this natural need to create . . . hopefully I’m creating something useful for both you and me.