Ewing’s Sarcoma of the Pancreas (Extraosseous Ewing’s Sarcoma)
Ewing’s sarcoma is a highly aggressive malignant tumor most commonly affecting long bones in children and adolescents. Approximately 30% of Ewing’s sarcoma are extraosseous (outside of bone) and the pancreas is considered to be an extremely uncommon site. My tumor at time of diagnosis was approximately 6-7 centimeters in size.
(ifosfamide, etoposide, vincristine, doxorubicin, and cyclophosphamide)
Whipple surgery (pancreatoduodenectomy)
My Cancer Center
Moffitt Cancer Center
Dr. Damon Reed, Oncologist
Dr. Pamela Hodul, Surgeon
We shall see!
That Time I Was Diagnosed with a Rare Cancer (Part I)
I’m not here to tell you how to respond to a diagnosis. I’m here to share my own experience and my own reactions, and maybe some of it will resonate with you. Or maybe you’re a caregiver and it…
That Time I Was Diagnosed with a Rare Cancer (Part II)
I continued to record several videos over the following weeks. Not knowing a specific diagnosis kept me moving through each day as if everything was going to be alright, and talking to the camera was cathartic.
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