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My Diagnosis

Ewing’s Sarcoma of the Pancreas (Extraosseous Ewing’s Sarcoma)

The Cancer

Ewing’s sarcoma is a highly aggressive malignant tumor most commonly affecting long bones in children and adolescents. Approximately 30% of Ewing’s sarcoma are extraosseous (outside of bone) and the pancreas is considered to be an extremely uncommon site. My tumor at time of diagnosis was approximately 6-7 centimeters in size.

My Treatment

Chemotherapy
(ifosfamide, etoposide, vincristine, doxorubicin, and cyclophosphamide)
Whipple surgery (pancreatoduodenectomy)

My Cancer Center

Moffitt Cancer Center
Tampa, FL

Dr. Damon Reed, Oncologist
Dr. Pamela Hodul, Surgeon

Prognosis

Unsure.
We shall see!

That Time I Was Diagnosed with a Rare Cancer (Part I)

I’m not here to tell you how to respond to a diagnosis. I’m here to share my own experience and my own reactions, and maybe some of it will resonate with you. Or maybe you’re a caregiver and it will help you understand some things your loved one is going through.

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